Wednesday, December 8, 2010

This Warm December

Hello Friends,
It's cold outside, but our little house is warm. Hot cocoa and Christmas oats begin every blustery day and I find myself cherishing every little day we spend together.

Aiden, Evie, and Daddy have picked and cut down the perfect tree, our first Leyland Cypress, we're officially South Carolinians now.

An angel Aiden says is Mommy rests crookedly on top of our little tree. We've decorated it with all the ornaments we've collected over the years.

And a few new ones this year to commemorate the new milestones in our lives.

The stockings are hung on the shelf with care. We're still waiting on Evie's, but I have an idea of how to make a very special one.

We've visited Christmas fairs, polished up our crafting skills,
and wrapped a few presents to tuck under the tree.
One of which holds this:

Evie's first dollie. My friends Jenn, Jenny, and I spent a sweet Tuesday sipping coffee, munching brownies, nursing our babies, and making these soft, huggable sweater babies out of reclaimed, felted wool. A matching hat for Evie to wear is on the way, as well as a few little things for the loved ones in our life.

My old felt Nativity block set is on display. I had hopes of refurbishing it this year, but Aiden won't give it up long enough for the hot glue to dry. I have a new appreciation for my Nanny who made it for me almost 25 years ago.

Christmas carols ring through our house and Aiden has found a new favorite, which we listen to several times a day.

Even now as I write, the tree is twinkling, Evie is snuggled up in my lap, Aiden is turning up the radio and dancing with a jingle bell, and a mug of hot coffee sits beside me. I need to get back to enjoying my little ones and cherishing this holiday season. I hope this Christmas finds you each as joyful and blessed as I feel right now.

Sunday, November 28, 2010

There Is Love

Precious one,
You were here
And because of you there was love.

In spring, you budded,
Tiny and frail as the blossom of a tree.

In secret, we rejoiced for you.
A mother and father were made.

Only their joyful heartbeats could give you away.
Only the sparkle of newfound love in their eyes.

You were here, sweet one,
And because of you there was love.

Our arms ache for you this month
As we realize you should be here with us now
And instead are cradled in the arms of God.

And there is nothing we can say.

We cherish you, dearest one,
As we cherish the promise of new life.
We hold you in our hearts always.

You were here, beloved,
And because of you, we know love.

Only our longing heartbeats can give it away.
Only the reflection of remembered love in our eyes.

In secret, we honor you.
A mother and father remain.

I know not what to say to you, my dearest friends. But, my prayers are with you now as they will always be.

Romans 8:28

Saturday, November 13, 2010

When My Heart is Breaking, Heaven Stands

On the Saturday before Halloween, Evie had a small seizure while we were visiting Dave's mom in North Carolina. After rushing to the E.R., she was treated for pneumonia because she had an infiltrate in the upper lobe of her left lung. We were sent home with the orders to return to the E.R. on Sunday for re-examination and to follow up with our pediatrician Monday.
That Monday, we visited our fabulous pediatrician, Dr. Fieste who hypothesized that her seizures were simply Benign Neonatal Sleep Myoclonus, a condition that causes babies to have something that looks like a seizure while waking up from sleep or a nap. He scheduled an EEG with a neurologist in Greenville just to be sure. We went home reassured and relaxed and slept soundly for the first time in two nights.
On Tuesday morning, after Dave had left for work and Aiden was brought to school, Evelyn had another seizure- like episode. This time it looked stronger than before. I noticed she was stirring her swing and when I went to look at her, her eyes were rolled back to the left and her arms and legs were rhythmically twitching. I lifted her and held her to my chest while I sang to her. When she came to, she smiled at me, cried, then began to nurse. I immediately brought her to Dr. Fieste. He notified our neurologist, who expedited our EEG and appointment to that Thursday.
Thursday came without incident and she sailed through her EEG without an episode. Our consultation with our neurologist, Dr. Morales was the next day.
Thursday night, Evie and Dave came to class with me because I was afraid of her having an episode without me. We were happy and relaxed though, because she had been fine since Tuesday and her episode then wasn't that bad.
Thursday night is "spend the night party" for Aiden. It started before Evie was born to get him ready to stay with my parents while we were in the hospital and never stopped. At 10 that night, Aiden called us crying because he left his "lambie" at home. Dave, the softy, went to bring it to him. While he was gone, Evie had another episode, this time, like we had guessed with the others, when she was rousing from sleep. It was more severe this time and I held her little shaking body close to mine and shushed her. She came to, nursed, and fell back asleep. I called Dave and he turned around and rushed home.
Friday morning, we were to see Dr. Morales. Although she did have another episode while waking up, we were still relaxed and chatted as we got ready about going to see the Clemson Percussion concert that night, confident that this appointment would sort things out. Neurological issues pepper Dave's family tree; with epilepsy, migraines, and tic disorders as far back as his great grandfather, possibly further. As I zipped up my knee high high-heeled boots, I joked that we would bring the hospital bag we had packed for Evie, because if we didn't, we would surely end up there.
On the way to the neurologist's office, I heard Evie's breathing change and upon looking back at her, discovered she was "seizing" once more. I shot into the back seat (which for those of you who have been in our car is quite a feat, with the stick-shift and limited space) and wedged myself between the carseats to stroke her head and sing to her. This was the most severe episode as of yet; longer and stronger than before, with drool pouring out of her little mouth. After coming to, she cried and went to sleep.
We arrived at the neurologist's shaking and wide eyed, toting a bewildered infant.
During our consultation, Dr. Morales confirmed that her EEG had shown seizure activity and upon looking her over, noted a white patch of hair on the right side of her head and some lighter colored areas on her stomach. Although the rest of her exam proved her to be developmentally on target, he predicted that given the combination of the seizures and the white hypomelanic macules or "ash leaf spots", Evelyn had tuberous sclerosis. He recommended immediate hospitalization to stabilize her seizures and test for TSC. He also told me not to nurse her until her testing was complete. His office called ahead to arrange an MRI and a room for us at Greenville Memorial Children's Hospital.
We rushed to the parking lot, Dave in quiet stoicism and I with with tears streaming down my face and trembling with adrenaline and began buckling her into her carseat when another seizure began. This was the strongest yet and the longest and was made increasingly terrifying by her lips turning blue at the end. I sobbed and screamed at Dave from my place in the backseat to drive as he tried to program the hospital into our gps. Evie came to, smiled at me, and dozed in her carseat beside me while we drove.
When we arrived at the hospital, we frustratingly parked what seemed like a mile away and ran-walked to admission, desperate to be admitted before another seizure struck. We sat in the business office waiting room, I trembling and periodically quietly crying, and Dave calmly holding sleeping Evie with one arm and reassuringly holding my hand with the other. As people shuffled in and out, one sweet mother told me that she would pray for us. We met with our admission consultant and at the end of all our paperwork she told us (me) sweetly that God would take care of us and things were going to be alright. She later met us in radiology to slip Dave $10 for food and to give us some Cokes she bought from a vending machine.
Evie slept on Dave's shoulder until it was time for her MRI. Unfortunately, with infants, general anesthesia must be used to get an adequate picture of the brain. I had to excuse myself while the nurse and anesthesiologist found a vein and inserted her I.V. (which would not be removed from her battered arm for 5 days). When babies are given anesthesia, they go out fast and this was our experience with Evie. They pumped it into her and she became limp in Dave's arms. We stayed in the MRI room with her and they gave us earplugs to wear for the 20 minutes that the scan would take. I decided to use the eyes open hypnosis I had learned during my childbirth class to ease my nerves during this time. I looked over and noticed Dave in his Catholic way crossing himself as he does before and after prayer. I felt God's peace wash over me and was more relaxed during this 20 minutes than I had been since the Saturday this all began and have since.
The scan ended and Evie came to, starving and crying. It had been 5 hours since she last nursed. I had no more tears left to cry, but my breasts cried for her.
We were admitted within within the hour. We settled into our room for the night and the resident gave me the ok to feed her. Evie received her first I.V. of Keppra to stop the seizures. By this time, my parents and Dave's mom and stepdad had arrived. Aiden was visiting a close family friend for the evening. My dad, a minister, prayed over her. We snuggled down, shaken, nerves shot, but a little relieved, believing to be on the other side of all this, and went to sleep for the night.
It wasn't long before the seizures began again. That dark night is a blur to me now. Just one long, quaking seizure. I rocked and attempted to nurse and sang and stroked and cried as seizure after seizure after seizure took my sweet baby from me hour after hour.
Morning came, and with the sun came relief, Evie's last seizure, much milder than the midnight tremors, occurred at 6 A.M. While Dave held her, sleeping, in his arms, we finally drifted off for a couple hours before our busy day began. When Evie finally roused, she giggled and cooed to us with the cheerfulness she has shown every day since she was two weeks old.
Around 11 A.M., Dr. Morales visited again, and after learning of her night of seizures, advised us that if she were to have another, her anti-seizure medicine would be changed to a drug that was more detrimental to infants and much more difficult to stabilize. Dave's parents left and my parents and us prayed over her, claiming God's healing grace for her little body and mind. Cautiously, anxiously we waited, praying constantly that the Keppra would be enough.
That Saturday was a hurried shuffling of tests and doctors. All in all she had a heart echo, a metabolic work up requiring 15 milliliters of blood (a lot for a little baby), and a sonogram of her kidneys (and of course the M.R.I). The neurologist ordered for the doctors from the pediatric intensive care unit to monitor her and for the nurses to do neurological checks every two hours.
That evening, Dr. Morales came again. Cautiously optimistic, with the results that all of her tests had come back normal. He had expected evidence of tuberous sclerosis, with tumors growing in her brain or at least her heart, but none had been found.
We stayed a few more days to be sure that her seizures had stabilized. All the while, Evie charmed every nurse and doctor who met her. Cautiously and professionally they would begin their shift, only to coo over her and gush to the next nurse coming onto shift how cheerful she was and how much personality she had. Several of our nurses came to sit with me and play with her for 10 to 20 minutes or so during their time with us which I don't know is normal or not, but I like to think they just really liked her. Even while they drew her blood, which took about half an hour, she calmly cooed at me and my mom, Mimi, while we held her still and sang to her. Also, while in the hospital, she always nursed with as much ferocity as that first hour she was born. And these things, her personality and her nursing, gave me peace.
We were discharged Tuesday and although she had another small seizure on Thursday morning, we feel we have reason to hope. Dr. Morales and our geneticist, Dr. Everman, remain "optimistic" and "reassured" respectively, that the evidence we have at this moment does not point to tuberous sclerosis. We are going to have an eye exam with Jervey Eye Group to confirm that there is no evidence of TS in her retina and possibly rerun some of the metabolic testing to see if there could be a cause for the seizures there. But so far, we have no diagnosis. They will be monitoring her over the next few weeks, months and years, along with Dr. Fieste, to see that no further evidence for tuberous sclerosis presents itself.
Dave and I remain cautiously optimistic, although so far some days and some hours of the day are better than others, that Evie will grow to be healthy, normal, and seizure free. I do have fears though, and grieve that we have lost some things that we have even yet to gain. Prom, for instance, her wedding, grandchildren, and vainly, that she will be disfigured by tuberous sclerosis. I also fear that she will be mentally disabled. But, these concerns are not for this time and each time I look at her and she beams back at me with that beautiful face, that beautiful smile, I take solace. Though my heart is breaking, heaven stands; though my world is shaking, we never leave His hands.

Tuesday, September 14, 2010

My Mother's Heart

The precious ache of a memory,

Yesterday’s face has died for me.

Each day you’re born again brand new.

There’s a sweet pain in my heart for you.

Gone from us are your early days.

Fragile moments, seeped away.

My summer thoughts they pool inside

And forever slumber in my mind.

My babies two are trapped as one.

At three feet tall, your life’s begun.

Dark amber curls replace the old

Honeysuckle wisps of angel’s gold.

Your moments of life I cannot grasp,

They trickle through my hands so fast.

But for comfort when our road does part,

I will hold them in my mother’s heart.


Saturday, September 11, 2010

Aiden wears Britty pajamas...

Yesterday, my parents and I brought the kids to Montreat, NC to visit my sister at college. Here are some highlights from our trip, according to Aiden:

"Britty, are you mommy's sister?" he asked as we pulled up to her dorm and she crawled into the car to sit on my lap because we were already pretty piled in. He then burst into the song "Lovely, Love My Family" by The Roots and made everyone sing. I'll give you a second to form a visual of this...

Britty knows the best song about Hermie the Wormie and how he ate "his car... his sandal... his other sandal... his house... his neighbor's house... and BURPS".

When we visit Britty, Aiden gets to eat a "BIG" pizza all by himself!

The ironworks store was disappointing because he did not figure out how an iron works, and that left him with a lot of questions...

The kitchen store was fun, after collecting everything he could reach in his shopping basket, he realized he had grabbed a "a brush to wash Domingo!" (a vegetable brush). Grandad could not say no and bought it... daddy will be so happy.

Aiden thinks Britty lives in the coolest "house" because she has "rocks in her walls". (Upon visiting her dorm and discovering the huge stone wall in the common room).

She also has a fort under her bed (lofted bed) and gets to eat pizza in her room and pour her water all by herself!

On our walk, we visited Lake Susan where Aiden was thrilled to see kayakers paddling around.

At Ten Thousand Villages, Mimi let him pick out a brand new "Pew Kitty" (puppet) to bring to church.

Best of all, Britty has a playground and when he goes to visit it her, he tells her "it's all mine and yours."

We love visiting Britty and I think we all teared up a little when she leaned into the car to hug him goodbye and he clung to neck and desperately pleaded "Britty, you can come with us!"

It's Britty's last year at Montreat and we're going to miss our "National Lampoon's Mountain Vacations". To think when we visited her the very first time, Aiden was only a tiny toddler who needed help going down the slide on her playground. I hope Aiden has a thousand magical memories of his cool Aunt Britt Britt's home in Montreat.

Thursday, August 26, 2010

All My Love

Dave and I knew that bringing Evelyn home and into our family would be a potential challenge, but we were surprised in what ways. I had read about how to introduce the new baby to the older sibling and brainstormed ways to make Aiden feel included. We read him books and gave him things to do to help prepare for the baby and build his self-efficacy as an older brother. We even began adjusting his routine months before to what we expected it might be with the new addition. We expected a moderate amount of "acting out" and regression in his behavior and prepared ourselves accordingly.

Evelyn came into our home with a considerably minimal reaction from big bro. He instantly loved her and his longing to care for her and even protect her was visible. He easily adapted to his routine and quickly began building a stronger attachment to Dave, who had overnight become his primary caregiver.

The shock came with my reaction to our transition. I sat in my room, bound to my bed just days after a c-section, with 17 stairs separating me from the little person I had spent 3 1/2 years diligently caring for and bonding with. The tears that this resulted in overwhelmed me and surprised me. I felt guilty for not being the presence in his life I had been days before and guilty that the attachment I had with my little bundle had not yet matched that of her older brother.

Fortunately a very wise woman reassured me that our hearts cannot be divided, that love flows through them and is forever replenished like a stream, not a well that can be depleted and runs dry. She told me that we are able to love many things with our whole heart, as we love God, our mothers, fathers, siblings, and friends then our spouses and children. Love is never cut up like a pie.

Jane Nelsen offers this same concept in a beautiful demonstration using the flame of a candle. I love the thought of incorporating this idea into the unity candle that Dave and I lit at our wedding. Maybe I could devise a special "ceremony" for our family using it.

Saturday, July 31, 2010

A Babywearing Song

"Waiting On An Angel" Ben Harper

Waiting on an angel

One to carry me home

Hope you come to see me soon

Cause I don' t want to go alone

I don' t want to go alone

Now angel won' t you come by me

Angel hear my plea

Take my hand lift me up

So that I can fly with thee

So that I can fly with thee

And I'm waiting on an angel

And I know it won' t be long

To find myself a resting place

In my angel's arms

In my angel's arms

So speak kind to a stranger

Cause you'll never know

It just might be an angel come

Knockin' at your door

Knockin' at your door

And I'm waiting on an angel

And I know it won't be long

To find myself a resting place

In my angel's arms

In my angel's arms

Waiting on an angel

One to carry me home

Hope you come and see me soon

Cause I don' t want to go alone

I don't want to go alone

Don' t want to go

I don't want to go alone

Friday, July 30, 2010

In Defense of Pillow Nursing

While researching the benefits of co-sleeping with a newborn I read that an infant's nighttime behaviors only make sense in the context of the mother.

Last night I found that a new mother's nighttime behaviors only make sense in the context of the newborn.

After I drifted off to sleep last night, Dave took Evelyn from beside me and placed her in her bassinet beside the bed. A few hours later, when Dave turned off the t.v. and pulled the blanket up over me, I told him (in my sleep) "No honey, there's too much material around Evelyn". At which point, he looked over at me and realized I was trying to nurse a pillow.

Later, he told me that on a related note, when he put Evelyn down in the bassinet, she pursed her lips and "nursed in her sleep".

See, we need to be together. We don't make any sense otherwise.

Wednesday, July 28, 2010

Evelyn's Birth

This summer has been an exciting whirlwind of change in the O'Connor house. Three became four. Our house is filled with pink; pink swing, pink blankets, pink ribbon, pink clothes, and to Aiden's delight: packing peanuts.

Our family spent the beginning of the summer preparing for the birth of Evelyn. We studied Hypnobabies, envisioned our perfect birth, collected cloth diapers, a wrap, a sling... we were ready and we had our hearts set on a beautiful, natural VBAC.

Waiting became a roller coaster. She'd be early, I was dilating and effacing, she was low. She'd be right on time... she'd be a little late. She wasn't dropping, round ligament too tight, too strong. Relax, relax, relax. She's getting too big, you won't be able to deliver her, you're too small. Relax, relax.

A c-section was scheduled for 42 weeks, declination would mean loss of care. Heartbreak, tears, failure. Relax.

41 weeks and 6 days: It's going to be ok, it will be better than the last one, we'll do this together, we'll use our hypnosis, you're safe, you're safe, relax. We'll be holding our baby in the morning. Don't be sad, it's not your fault. Go to sleep. Relax. Peace.

42 weeks. 4 am: No. Just go away. No, I'm done, hospital in 2 hours. I'll hold my baby this morning. Walking, stronger, stronger, closer, stronger. Hope?

Hospital. Hypnosis. Peace. Open. Open. Open....

Doctor. Anger. You know what I think you should do. No. I don't feel comfortable with you laboring past 42 weeks. I'm not past 42 weeks. No.

Doula. Peace, peace...

Ultrasound. Healthy. Not too big. Small head. Placenta looks great. Peace.

EFM. Chasing heartbeat, chasing, chasing. Ball. Bed. Squat. Chase. Hang. Open. Open. Open. Cool cloths. Hot packs. Ball. Hang. Chase. Peace. Water. Oranges. Honey. Peace. Open. Open. Open.

3 hours. Open. 5 hours. Open. 9 hours. Open. 12 hours. Open. 15 hours. Open. 16, 17, 18, 19. Open. Open. Open.

5 cm. 5 cm. 5 cm. 5cm. 5cm. 5cm. 5 cm.

Decels. Oxygen. Side. Pain. Oxygen. 5 cm. Other side. Pain. Decels. Oxygen. 5 cm. Epidural. Side. Oxygen. Pain. Oxygen. Oxygen. Fear. Fear. Baby?

C-section. Peace. Family. Peace. Prayer. Peace. Peace. Peace.

Hypnosis. Love. Comfort. Joy. OR. Love. Comfort. Joy. Dave. Love. Comfort. Joy. Peace. Peace. Peace.

Baby. Baby. Baby. Safe.